Well, where to begin. Gavin has been doing very well, aside from all of the boys being sick with ear infections. Two weeks ao we saved up for Gavin to have 5 therapy sessions in one week. 2 in GR and 3 in Lansing and these went very well. He's in a great mood and sooooo bendy. We were so excited to see all of his new tricks. Like standing with a little help and taking a few steps to sit down in a chair. Then we started him on Amoxicillin for an ear infection and eights days later....drama.
After 10 months seizure free- the last one was with his hip surgery last summer- Gavin had 12 seizures on Monday. Boy does that suck up a week with lab work, EEG's and Neurology appointments. The great news, we discontinued the antibiotic and upped his seizure med and he only had two more small issues on Tuesday. We're praying it was just the antibiotic that kicked something off, but no one seems to know anything. I REALLY miss our old Neuro who abandoned us and moved to Indiana. Bitter? No thanks, I have some. ;)
The bad news is having the old horror worst case scenario replayed for us. IF Gavin begins having seizures, there is an incredible chance that the kind he'll have will be the 'destroy his brain and leave him veggie-like' kind. What a devastating thought. But we keep reminding ourselves and the docs, that he's 1 in 25 million and not suppose to be where he is now.
Chase and Parker are doing well and VERY excited about Saturdays Easter Egg Hunt. I'll try to attach the picture of Gavin taken after the boys colored him with bathtub crayons.
Look Mama, Gavin's an Easter Egg!
